One Mom’s Journey with Myasthenia Gravis

Kim’s sons were ages seven and 10 when she was diagnosed with generalized myasthenia gravis (MG), a life-altering, rare, autoimmune disease. In this video, she shares the scariness of her MG diagnosis, the difficulties that come with an invisible illness, and the impact of her rare disease on her family. Her sons took on more responsibilities at a young age than they would have if she had not been diagnosed with myasthenia gravis. And she knows that her illness impacts and weighs on her husband as well. 

Kim’s MG symptoms began with dry eyes, slurring words, and difficulty swallowing or speaking. Today, some days are better than others, but managing an invisible illness like MG is incredibly challenging both physically and emotionally. And she often worries about her myasthenia gravis standing in the way of being there for the big moments in her sons’ lives, like college graduations or weddings. But Kim has decided that, “I have MG, MG doesn’t have me.”

“I’m the best mom that I can be and I’m the best wife that I can be,” Kim shares. “But I am so much different than who I was before MG.”

Watch to learn more about her inspiring story of life with this rare, autoimmune disease.

Want to hear from more people living with generalized Myasthenia Gravis about their experiences? Meet Meridith, Jeri, Bryan, SeAndrea, Jessica, Tiffany, and Thomas.